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Title: Roles of cancer registries in enhancing oncology drug access in the asia-pacific region
Authors: Swee Sung Soon
Hwee Yong Lim
Gilberto Lopes
Jeonghoon Ahn
Min Hu
Hishamshah Mohd Ibrahim
Anand Jha
Bor Sheng Ko
Pak Wai Lee
Diana MacDonell
Ekaphop Sirachainan
Hwee Lin Wee
National University of Singapore
National Cancer Centre, Singapore
The Johns Hopkins School of Medicine
Collaborating Agency
Fudan University
Kuala Lumpur Hospital
Market Access
National Taiwan University Hospital
Mahidol University
Keywords: Biochemistry, Genetics and Molecular Biology;Medicine
Issue Date: 1-Jan-2013
Citation: Asian Pacific Journal of Cancer Prevention. Vol.14, No.4 (2013), 2159-2165
Abstract: Cancer registries help to establish and maintain cancer incidence reporting system, serve as a resource for investigation of cancer and its causes, and provide information for planning and evaluation of preventive and control programs. However, their wider role in directly enhancing oncology drug access has not been fully explored. We examined the value of cancer registries in oncology drug access in the Asia-Pacific region on three levels: (1) specific registry variable types; (2) macroscopic strategies on the national level; and (3) a regional cancer registry network. Using literature search and proceedings from an expert forum, this paper covers recent cancer registry developments in eight economies in the Asia-Pacific region - Australia, China, Hong Kong, Malaysia, Singapore, South Korea, Taiwan, and Thailand - and the ways they can contribute to oncology drug access. Specific registry variables relating to demographics, tumor characteristics, initial treatment plans, prognostic markers, risk factors, and mortality help to anticipate drug needs, identify high-priority research area and design access programs. On a national level, linking registry data with clinical, drug safety, financial, or drug utilization databases allows analyses of associations between utilization and outcomes. Concurrent efforts should also be channeled into developing and implementing data integrity and stewardship policies, and providing clear avenues to make data available. Less mature registry systems can employ modeling techniques and ad-hoc surveys while increasing coverage. Beyond local settings, a cancer registry network for the Asia-Pacific region would offer cross-learning and research opportunities that can exert leverage through the experiences and capabilities of a highly diverse region.
ISSN: 2476762X
Appears in Collections:Scopus 2011-2015

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