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dc.contributor.authorSwee Sung Soonen_US
dc.contributor.authorHwee Yong Limen_US
dc.contributor.authorGilberto Lopesen_US
dc.contributor.authorJeonghoon Ahnen_US
dc.contributor.authorMin Huen_US
dc.contributor.authorHishamshah Mohd Ibrahimen_US
dc.contributor.authorAnand Jhaen_US
dc.contributor.authorBor Sheng Koen_US
dc.contributor.authorPak Wai Leeen_US
dc.contributor.authorDiana MacDonellen_US
dc.contributor.authorEkaphop Sirachainanen_US
dc.contributor.authorHwee Lin Weeen_US
dc.contributor.otherNational University of Singaporeen_US
dc.contributor.otherNational Cancer Centre, Singaporeen_US
dc.contributor.otherThe Johns Hopkins School of Medicineen_US
dc.contributor.otherCollaborating Agencyen_US
dc.contributor.otherFudan Universityen_US
dc.contributor.otherKuala Lumpur Hospitalen_US
dc.contributor.otherMarket Accessen_US
dc.contributor.otherNational Taiwan University Hospitalen_US
dc.contributor.otherMahidol Universityen_US
dc.identifier.citationAsian Pacific Journal of Cancer Prevention. Vol.14, No.4 (2013), 2159-2165en_US
dc.description.abstractCancer registries help to establish and maintain cancer incidence reporting system, serve as a resource for investigation of cancer and its causes, and provide information for planning and evaluation of preventive and control programs. However, their wider role in directly enhancing oncology drug access has not been fully explored. We examined the value of cancer registries in oncology drug access in the Asia-Pacific region on three levels: (1) specific registry variable types; (2) macroscopic strategies on the national level; and (3) a regional cancer registry network. Using literature search and proceedings from an expert forum, this paper covers recent cancer registry developments in eight economies in the Asia-Pacific region - Australia, China, Hong Kong, Malaysia, Singapore, South Korea, Taiwan, and Thailand - and the ways they can contribute to oncology drug access. Specific registry variables relating to demographics, tumor characteristics, initial treatment plans, prognostic markers, risk factors, and mortality help to anticipate drug needs, identify high-priority research area and design access programs. On a national level, linking registry data with clinical, drug safety, financial, or drug utilization databases allows analyses of associations between utilization and outcomes. Concurrent efforts should also be channeled into developing and implementing data integrity and stewardship policies, and providing clear avenues to make data available. Less mature registry systems can employ modeling techniques and ad-hoc surveys while increasing coverage. Beyond local settings, a cancer registry network for the Asia-Pacific region would offer cross-learning and research opportunities that can exert leverage through the experiences and capabilities of a highly diverse region.en_US
dc.rightsMahidol Universityen_US
dc.subjectBiochemistry, Genetics and Molecular Biologyen_US
dc.titleRoles of cancer registries in enhancing oncology drug access in the asia-pacific regionen_US
dc.typeShort Surveyen_US
Appears in Collections:Scopus 2011-2015

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