Publication:
Consent and Community Engagement in diverse research contexts: Reviewing and developing research and practice

Issued Date

2013-10-01

Resource Type

Article

ISSN

15562654
15562646

DOI

10.1525/jer.2013.8.4.1

Other identifier(s)

2-s2.0-84887422411

Rights

Mahidol University

Rights Holder(s)

SCOPUS

Bibliographic Citation

Journal of Empirical Research on Human Research Ethics. Vol.8, No.4 (2013), 1-18

Suggested Citation

Susan Bull, Phaik Yeong Cheah, Khin Maung Lwin, Vicki Marsh, Sassy Molyneux, Michael Parker, Sally Theobald, Sunita Bandewar, Gabriela Calazans, Tamara Chipasula, Kheng Chheng, Alun Davies, Michael Dunn, M. A. Faiz, John Imrie, Dorcas Kamuya, Angeliki Kerasidou, James V. Lavery, Graham Lindegger, Eleanor MacPherson, Charles T. Muga, Stephen Nakibinge, Paul Ndebele, John Sadalaki, Janet Seeley, Mark Sheehan, Rhian Twine, Jantina De Vries Consent and Community Engagement in diverse research contexts: Reviewing and developing research and practice. Journal of Empirical Research on Human Research Ethics. Vol.8, No.4 (2013), 1-18. doi:10.1525/jer.2013.8.4.1 Retrieved from: https://repository.li.mahidol.ac.th/handle/20.500.14594/32778

Research Projects

Organizational Units

Authors

Journal Issue

Thesis

Title

Consent and Community Engagement in diverse research contexts: Reviewing and developing research and practice

Author(s)

Susan Bull
 Phaik Yeong Cheah
 Khin Maung Lwin
 Vicki Marsh
 Sassy Molyneux
 Michael Parker
 Sally Theobald
 Sunita Bandewar
 Gabriela Calazans
 Tamara Chipasula
 Kheng Chheng
 Alun Davies
 Michael Dunn
 M. A. Faiz
 John Imrie
 Dorcas Kamuya
 Angeliki Kerasidou
 James V. Lavery
 Graham Lindegger
 Eleanor MacPherson
 Charles T. Muga
 Stephen Nakibinge
 Paul Ndebele
 John Sadalaki
 Janet Seeley
 Mark Sheehan
 Rhian Twine
 Jantina De Vries

Other Contributor(s)

University of Oxford
 Mahidol University
 Shoklo Malaria Research Unit
 KEMRI-Wellcome Trust Collaborative Research Programme
 Nuffield Department of Clinical Medicine
 Liverpool School of Tropical Medicine
 University of Toronto
 Universidade de Sao Paulo - USP
 Malawi-Liverpool-Wellcome Trust (MW)
 Angkor Hospital for Children (AHC)
 Dev Care Foundation
 University of KwaZulu-Natal
 UCL
 Kenya Medical Research Institute
 AIDS Healthcare Foundation
 Medical Research Council of Zimbabwe
 The Colleges of Medicine of South Africa
 MRC/UVRI Uganda Research Unit on AIDS
 University of East Anglia
 University of Witwatersrand
 University of Cape Town

Abstract

Consent and community engagement (CE) in health research are two aspects of a single concern-that research is carried out in a respectful manner where social value is maximized. There are important overlaps and interdependencies between consent and CE; for example, CE can provide insights into how best to tailor consent to context and can be an important component of consent processes. Engaging communities can also have intrinsic and instrumental value beyond consent; for example, as a means of showing respect and identifying appropriate ways of working respectfully. In this paper we critically examine how CE and consent processes are characterized, conducted, and evaluated in diverse health research contexts, and propose a preliminary research agenda to support future learning in these critical areas.

Keyword(s)

Psychology
 Social Sciences

Availability

URI

https://repository.li.mahidol.ac.th/handle/20.500.14594/32778

Collections

Scopus 2011-2015