Publication: Measurement of Family Management in Families of Individuals With Down Syndrome: A Cross-Cultural Investigation
Issued Date
2021-02-01
Resource Type
ISSN
1552549X
10748407
10748407
Other identifier(s)
2-s2.0-85097163167
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Mahidol University
Rights Holder(s)
SCOPUS
Bibliographic Citation
Journal of Family Nursing. Vol.27, No.1 (2021), 8-22
Suggested Citation
Marcia Van Riper, George J. Knafl, Maria do Céu Barbieri-Figueiredo, Maria Caples, Hyunkyung Choi, Gert de Graaf, Elysângela Dittz Duarte, Junko Honda, Elena Marta, Supapak Phetrasuwan, Sara Alfieri, Margareth Angelo, Wannee Deoisres, Louise Fleming, Aline Soares dos Santos, Maria João Rocha da Silva, Beth Skelton, Shelley van der Veek, Kathleen A. Knafl Measurement of Family Management in Families of Individuals With Down Syndrome: A Cross-Cultural Investigation. Journal of Family Nursing. Vol.27, No.1 (2021), 8-22. doi:10.1177/1074840720975167 Retrieved from: https://repository.li.mahidol.ac.th/handle/20.500.14594/78497
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Title
Measurement of Family Management in Families of Individuals With Down Syndrome: A Cross-Cultural Investigation
Author(s)
Marcia Van Riper
George J. Knafl
Maria do Céu Barbieri-Figueiredo
Maria Caples
Hyunkyung Choi
Gert de Graaf
Elysângela Dittz Duarte
Junko Honda
Elena Marta
Supapak Phetrasuwan
Sara Alfieri
Margareth Angelo
Wannee Deoisres
Louise Fleming
Aline Soares dos Santos
Maria João Rocha da Silva
Beth Skelton
Shelley van der Veek
Kathleen A. Knafl
George J. Knafl
Maria do Céu Barbieri-Figueiredo
Maria Caples
Hyunkyung Choi
Gert de Graaf
Elysângela Dittz Duarte
Junko Honda
Elena Marta
Supapak Phetrasuwan
Sara Alfieri
Margareth Angelo
Wannee Deoisres
Louise Fleming
Aline Soares dos Santos
Maria João Rocha da Silva
Beth Skelton
Shelley van der Veek
Kathleen A. Knafl
Other Contributor(s)
Rambhai Barni Rajabhat University
Universidade Federal de Minas Gerais
University College Cork
The University of North Carolina at Chapel Hill
Università Cattolica del Sacro Cuore
University of Hyogo
Universiteit Leiden
Mahidol University
Kyungpook National University
Universidade de São Paulo
Universidade do Porto
Garden Valley School Division
Dutch Down Syndrome Foundation
Universidade Federal de Minas Gerais
University College Cork
The University of North Carolina at Chapel Hill
Università Cattolica del Sacro Cuore
University of Hyogo
Universiteit Leiden
Mahidol University
Kyungpook National University
Universidade de São Paulo
Universidade do Porto
Garden Valley School Division
Dutch Down Syndrome Foundation
Abstract
Down syndrome (DS) is the most common genetic cause of intellectual disability worldwide. The purpose of this analysis was to determine the internal consistency reliability of eight language versions of the Family Management Measure (FaMM) and compare family management of DS across cultures. A total of 2,740 parents of individuals with DS from 11 countries completed the FaMM. The analysis provided evidence of internal consistency reliability exceeding.70 for four of six FaMM scales for the entire sample. Across countries, there was a pattern of positive family management. Cross-cultural comparisons revealed parents from Brazil, Spain, and the United States had the most positive family management and respondents from Ireland, Italy, Japan, and Korea had the least positive. The rankings were mixed for the four remaining countries. These findings provide evidence of overall strong internal consistency reliability of the FaMM. More cross-cultural research is needed to understand how social determinants of health influence family management in families of individuals with DS.