Publication: Motivations and perceptions of community advisory boards in the ethics of medical research: the case of the Thai-Myanmar border.
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Accepted Date
2014-01-31
Issued Date
2014-02-17
Copyright Date
2014
Resource Type
Language
eng
ISSN
1472-6939 (electronic)
Rights
Mahidol University
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BioMed Central
Bibliographic Citation
Maung Lwin K, Cheah PY, Cheah PK, White NJ, Day NP, Nosten F. et al. Motivations and perceptions of community advisory boards in the ethics of medical research: the case of the Thai-Myanmar border. BMC Med Ethics. 2014 Feb 17;15:12.
Suggested Citation
Maung, Lwin K., Cheah, Phaik Yeong, Cheah, Phaik Kin, White, Nicholas J., Day, Nicholas P., Nosten, Francois, Parker, Michael Motivations and perceptions of community advisory boards in the ethics of medical research: the case of the Thai-Myanmar border.. Maung Lwin K, Cheah PY, Cheah PK, White NJ, Day NP, Nosten F. et al. Motivations and perceptions of community advisory boards in the ethics of medical research: the case of the Thai-Myanmar border. BMC Med Ethics. 2014 Feb 17;15:12.. doi:10.1186/1472-6939-15-12. Retrieved from: https://repository.li.mahidol.ac.th/handle/123456789/729
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Title
Motivations and perceptions of community advisory boards in the ethics of medical research: the case of the Thai-Myanmar border.
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Abstract
BACKGROUND: Community engagement is increasingly promoted as a marker of good,
ethical practice in the context of international collaborative research in
low-income countries. There is, however, no widely agreed definition of community
engagement or of approaches adopted. Justifications given for its use also vary.
Community engagement is, for example, variously seen to be of value in: the
development of more effective and appropriate consent processes; improved
understanding of the aims and forms of research; higher recruitment rates; the
identification of important ethical issues; the building of better relationships
between the community and researchers; the obtaining of community permission to
approach potential research participants; and, the provision of better health
care. Despite these diverse and potentially competing claims made for the
importance of community engagement, there is very little published evidence on
effective models of engagement or their evaluation.
METHODS: In this paper, drawing upon interviews with the members of a Community
Advisory Board on the Thai-Myanmar border, we describe and critically reflect
upon an approach to community engagement which was developed in the context of
international collaborative research in the border region.
RESULTS AND CONCLUSIONS: Drawing on our analysis, we identify a number of
considerations relevant to the development of an approach to evaluating community
engagement in this complex research setting. The paper also identifies a range of
important ways in which the Community Advisory Board is in practice understood by
its members (and perhaps by community members beyond this) to have morally
significant roles and responsibilities beyond those usually associated with the
successful and appropriate conduct of research.