Understanding Caregiver Perspectives on the Management of Individuals With Parkinson's Disease in Thailand: A Qualitative Study

Abstract

Caregivers' perspectives, knowledge, and coping strategies critically influence the care of individuals with Parkinson's disease. This study explores the experiences, challenges, coping mechanisms, and support needs of caregivers in Thailand. Ten caregivers from the Physical Therapy Centre at Mahidol University participated in face-to-face, in-depth interviews. Thematic analysis identified four key themes: understanding of Parkinson's disease, daily caregiving responsibilities, concerns and challenges in Parkinson's care, and unmet needs and expectations. Caregivers reported difficulties managing motor symptoms, particularly during medication ‘off' periods, and identified physiotherapy as a significant concern. They described challenges in sustaining motivation and selecting appropriate exercises. Without formal training, caregivers relied on self-learning through online platforms, hospital brochures, and personal experience. Emotional strain, fear of causing harm, and time burdens related to medication and care routines were commonly reported. Significant unmet needs included access to stage-specific educational materials, practical physiotherapy guidance, and financial support. These findings highlight the multifaceted challenges faced by caregivers, particularly in terms of managing symptoms and accessing limited information and resources. Addressing these gaps through structured caregiver education, physiotherapy training, and support services is essential to enhance caregiving capacity and improve care outcomes for individuals with Parkinson's.