Family Interactions Among Family Caregivers and Other Family Members of Older Adults with Dementia (OAWD) in Indonesia: A Phenomenological Analysis

Abstract

Previous studies emphasize the effects of dementia on families, particularly those providing care. However, understanding of how caregiving influences the relationships between family caregivers and other relatives is limited, especially in the context of caring for older adults with dementia (OAWD) in Indonesia. The objective of this study is to explore the experiences of family caregivers of OAWD and other family members who face challenges and to understand the mechanisms of adaptation in family interactions within the context of caregiving for OAWD in Indonesia. This study employed a phenomenological research design involving in-depth interviews with thirty respondents: 15 family caregivers and 15 family members from one family relationship. Thematic analysis identified patterns from respondents’ perspectives. Family caregiver interactions and adaptations can be categorized into six themes. Findings highlight the significance of family interactions, strengthening ties, and adaptability in managing demanding roles. Caregivers and family members experience changes in interactions across diverse dementia care settings at home. It emphasizes the need for intervention support for families, as endorsed by policy and caregiver groups, aiming to enhance the care-life balance. This support is crucial for meeting the requirements of families with dementia care needs at home.