Family adaptation in families of individuals with Down syndrome from 12 countries
Issued Date
2023-01-01
Resource Type
ISSN
15524868
eISSN
15524876
Scopus ID
2-s2.0-85176146312
Journal Title
American Journal of Medical Genetics, Part C: Seminars in Medical Genetics
Rights Holder(s)
SCOPUS
Bibliographic Citation
American Journal of Medical Genetics, Part C: Seminars in Medical Genetics (2023)
Suggested Citation
Van Riper M., Knafl G.J., Knafl K.A., do Céu Barbieri-Figueiredo M., Barnoy S., Caples M., Choi H., Cosgrove B., Duarte E.D., Honda J., Marta E., Phetrasuwan S., Alfieri S., Angelo M., Deoisres W., Fleming L., dos Santos A.S., da Silva M.J.R. Family adaptation in families of individuals with Down syndrome from 12 countries. American Journal of Medical Genetics, Part C: Seminars in Medical Genetics (2023). doi:10.1002/ajmg.c.32075 Retrieved from: https://repository.li.mahidol.ac.th/handle/20.500.14594/91065
Title
Family adaptation in families of individuals with Down syndrome from 12 countries
Author's Affiliation
Centro de Investigação em Tecnologias e Serviços de Saúde, Porto
Rambhai Barni Rajabhat University
Universidade Federal de Minas Gerais
University College Cork
The University of North Carolina at Chapel Hill
Università Cattolica del Sacro Cuore
University of Hyogo
Universidad de Huelva
Mahidol University
Kyungpook National University
Universidade de São Paulo
Universidade do Porto
Tel Aviv University
Garden Valley School Division
Rambhai Barni Rajabhat University
Universidade Federal de Minas Gerais
University College Cork
The University of North Carolina at Chapel Hill
Università Cattolica del Sacro Cuore
University of Hyogo
Universidad de Huelva
Mahidol University
Kyungpook National University
Universidade de São Paulo
Universidade do Porto
Tel Aviv University
Garden Valley School Division
Other Contributor(s)
Abstract
Our current understanding of adaptation in families of individuals with Down syndrome (DS) is based primarily on findings from studies focused on participants from a single country. Guided by the Resiliency Model of Family Stress, Adjustment, and Adaptation, the purpose of this cross-country investigation, which is part of a larger, mixed methods study, was twofold: (1) to compare family adaptation in 12 countries, and (2) to examine the relationships between family variables and family adaptation. The focus of this study is data collected in the 12 countries where at least 30 parents completed the survey. Descriptive statistics were generated, and mean family adaptation was modeled in terms of each predictor independently, controlling for an effect on covariates. A parsimonious composite model for mean family adaptation was adaptively generated. While there were cross-country differences, standardized family adaptation mean scores fell within the average range for all 12 countries. Key components of the guiding framework (i.e., family demands, family appraisal, family resources, and family problem-solving communication) were important predictors of family adaptation. More cross-country studies, as well as longitudinal studies, are needed to fully understand how culture and social determinants of health influence family adaptation in families of individuals with DS.