Informal care for people with dementia in Europe
Issued Date
2025-01-01
Resource Type
eISSN
24260266
Scopus ID
2-s2.0-85215353857
Pubmed ID
39800459
Journal Title
The journal of prevention of Alzheimer's disease
Volume
12
Issue
1
Rights Holder(s)
SCOPUS
Bibliographic Citation
The journal of prevention of Alzheimer's disease Vol.12 No.1 (2025) , 100015
Suggested Citation
Handels R., Hataiyusuk S., Wimo A., Sköldunger A., Bakker C., Bieber A., Ciccone A., Defanti C.A., Fabbo A., Fascendini S., Frölich L., Gervès-Pinquié C., Gonçalves-Pereira M., Irving K., Koopmans R., Mecocci P., Merlo P., Michalowsky B., Peters O., Pijnenburg Y., Ribeiro Ó., Salbaek G., Schwarzkopf L., Verbeek H., de Vugt M., Woods B., Zanetti O., Winblad B., Jönsson L. Informal care for people with dementia in Europe. The journal of prevention of Alzheimer's disease Vol.12 No.1 (2025) , 100015. doi:10.1016/j.tjpad.2024.100015 Retrieved from: https://repository.li.mahidol.ac.th/handle/20.500.14594/103022
Title
Informal care for people with dementia in Europe
Author(s)
Handels R.
Hataiyusuk S.
Wimo A.
Sköldunger A.
Bakker C.
Bieber A.
Ciccone A.
Defanti C.A.
Fabbo A.
Fascendini S.
Frölich L.
Gervès-Pinquié C.
Gonçalves-Pereira M.
Irving K.
Koopmans R.
Mecocci P.
Merlo P.
Michalowsky B.
Peters O.
Pijnenburg Y.
Ribeiro Ó.
Salbaek G.
Schwarzkopf L.
Verbeek H.
de Vugt M.
Woods B.
Zanetti O.
Winblad B.
Jönsson L.
Hataiyusuk S.
Wimo A.
Sköldunger A.
Bakker C.
Bieber A.
Ciccone A.
Defanti C.A.
Fabbo A.
Fascendini S.
Frölich L.
Gervès-Pinquié C.
Gonçalves-Pereira M.
Irving K.
Koopmans R.
Mecocci P.
Merlo P.
Michalowsky B.
Peters O.
Pijnenburg Y.
Ribeiro Ó.
Salbaek G.
Schwarzkopf L.
Verbeek H.
de Vugt M.
Woods B.
Zanetti O.
Winblad B.
Jönsson L.
Author's Affiliation
Medizinische Fakultät Mannheim
Faculty of Health, Medicine and Life Sciences
Humanitas Gavazzeni Hospital
Deutsches Zentrum für Neurodegenerative Erkrankungen
IRCCS Centro San Giovanni di Dio Fatebenefratelli
Azienda USL di Modena
Sykehuset I Vestfold
Azienda Ospedaliera Carlo Poma
IFT Institut für Therapieforschung
NOVA Medical School - Faculdade de Ciências Médicas, Universidade Nova de Lisboa
Charité – Universitätsmedizin Berlin
Bangor University
Dublin City University
Universidade de Aveiro
Martin-Luther-Universität Halle-Wittenberg
Karolinska Institutet
Vrije Universiteit Amsterdam
Radboud University Medical Center
des Reflets
Ospedale Briolini
Faculty of Health, Medicine and Life Sciences
Humanitas Gavazzeni Hospital
Deutsches Zentrum für Neurodegenerative Erkrankungen
IRCCS Centro San Giovanni di Dio Fatebenefratelli
Azienda USL di Modena
Sykehuset I Vestfold
Azienda Ospedaliera Carlo Poma
IFT Institut für Therapieforschung
NOVA Medical School - Faculdade de Ciências Médicas, Universidade Nova de Lisboa
Charité – Universitätsmedizin Berlin
Bangor University
Dublin City University
Universidade de Aveiro
Martin-Luther-Universität Halle-Wittenberg
Karolinska Institutet
Vrije Universiteit Amsterdam
Radboud University Medical Center
des Reflets
Ospedale Briolini
Corresponding Author(s)
Other Contributor(s)
Abstract
INTRODUCTION: Informal care estimates for use in health-economic models are lacking. We aimed to estimate the association between informal care time and dementia symptoms across Europe. METHODS: A secondary analysis was performed on 13,529 observations in 5,369 persons from 9 European pooled cohort or trial studies in community-dwelling persons with dementia. A mixed regression model was fitted to time spent on instrumental or basic activities of daily living using disease severity and demographic characteristics. RESULTS: Daily informal care time was 0.5 hours higher in moderate compared to mild and 1.3h higher in severe compared to mild cognitive impairment. Likewise, this was 1.2h and 2.7h for functional disability and 0.3h and 0.6h for behavioral symptoms in the same directions. DISCUSSION: Estimates can be used in both single- and multi-domain health-economic models for dementia in European settings.