Publication: Measuring impairments of functioning and health in patients with axial spondyloarthritis by using the ASAS Health Index and the Environmental Item Set: Translation and cross-cultural adaptation into 15 languages
Issued Date
2016-01-01
Resource Type
ISSN
20565933
Other identifier(s)
2-s2.0-85016006858
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Mahidol University
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SCOPUS
Bibliographic Citation
RMD Open. Vol.2, No.2 (2016)
Suggested Citation
U. Kiltz, D. Van Der Heijde, A. Boonen, W. Bautista-Molano, R. Burgos-Vargas, P. Chiowchanwisawakit, T. Duruoz, B. El-Zorkany, I. Essers, I. Gaydukova, P. Géher, L. Gossec, S. Grazio, J. Gu, M. A. Khan, T. J. Kim, W. P. Maksymowych, H. Marzo-Ortega, V. Navarro-Compán, I. Olivieri, D. Patrikos, F. M. Pimentel-Santos, M. Schirmer, F. Van Den Bosch, U. Weber, J. Zochling, J. Braun Measuring impairments of functioning and health in patients with axial spondyloarthritis by using the ASAS Health Index and the Environmental Item Set: Translation and cross-cultural adaptation into 15 languages. RMD Open. Vol.2, No.2 (2016). doi:10.1136/rmdopen-2016-000311 Retrieved from: https://repository.li.mahidol.ac.th/handle/20.500.14594/40908
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Title
Measuring impairments of functioning and health in patients with axial spondyloarthritis by using the ASAS Health Index and the Environmental Item Set: Translation and cross-cultural adaptation into 15 languages
Author(s)
U. Kiltz
D. Van Der Heijde
A. Boonen
W. Bautista-Molano
R. Burgos-Vargas
P. Chiowchanwisawakit
T. Duruoz
B. El-Zorkany
I. Essers
I. Gaydukova
P. Géher
L. Gossec
S. Grazio
J. Gu
M. A. Khan
T. J. Kim
W. P. Maksymowych
H. Marzo-Ortega
V. Navarro-Compán
I. Olivieri
D. Patrikos
F. M. Pimentel-Santos
M. Schirmer
F. Van Den Bosch
U. Weber
J. Zochling
J. Braun
D. Van Der Heijde
A. Boonen
W. Bautista-Molano
R. Burgos-Vargas
P. Chiowchanwisawakit
T. Duruoz
B. El-Zorkany
I. Essers
I. Gaydukova
P. Géher
L. Gossec
S. Grazio
J. Gu
M. A. Khan
T. J. Kim
W. P. Maksymowych
H. Marzo-Ortega
V. Navarro-Compán
I. Olivieri
D. Patrikos
F. M. Pimentel-Santos
M. Schirmer
F. Van Den Bosch
U. Weber
J. Zochling
J. Braun
Other Contributor(s)
Rheumazentrum Ruhrgebiet St. Josefs-Krankenhaus
Leiden University Medical Center - LUMC
University Hospital Maastricht
Universidad Militar Nueva Granada
Universidad Nacional Autónoma de México
Mahidol University
Marmara Universitesi
Cairo University
Saratov State Medical University named after V. I. Razumovsky
Semmelweis Egyetem
Sorbonne Universite
Hôpital Universitaire Pitié Salpêtrière
University of Zagreb School of Medicine
Sun Yat-Sen University
Case Western Reserve University
Chonnam National University, College of Medicine
University of Alberta
University of Leeds
Hospital Universitario La Paz
Ospedale San Carlo, Potenza
Metropolitan Hospital, Athens
Universidade de Lisboa
Medizinische Universitat Innsbruck
University Hospital of Ghent
King Christian 10th Hospital for Rheumatic Diseases
Syddansk Universitet
University of Tasmania
Leiden University Medical Center - LUMC
University Hospital Maastricht
Universidad Militar Nueva Granada
Universidad Nacional Autónoma de México
Mahidol University
Marmara Universitesi
Cairo University
Saratov State Medical University named after V. I. Razumovsky
Semmelweis Egyetem
Sorbonne Universite
Hôpital Universitaire Pitié Salpêtrière
University of Zagreb School of Medicine
Sun Yat-Sen University
Case Western Reserve University
Chonnam National University, College of Medicine
University of Alberta
University of Leeds
Hospital Universitario La Paz
Ospedale San Carlo, Potenza
Metropolitan Hospital, Athens
Universidade de Lisboa
Medizinische Universitat Innsbruck
University Hospital of Ghent
King Christian 10th Hospital for Rheumatic Diseases
Syddansk Universitet
University of Tasmania
Abstract
© 2016, BMJ Publishing Group. All rights reserved. Introduction: The Assessments of SpondyloArthritis international society Health Index (ASAS HI) measures functioning and health in patients with spondyloarthritis (SpA) across 17 aspects of health and 9 environmental factors (EF). The objective was to translate and adapt the original English version of the ASAS HI, including the EF Item Set, cross-culturally into 15 languages. Methods: Translation and cross-cultural adaptation has been carried out following the forward-backward procedure. In the cognitive debriefing, 10 patients/country across a broad spectrum of sociodemographic background, were included. Results: The ASAS HI and the EF Item Set were translated into Arabic, Chinese, Croatian, Dutch, French, German, Greek, Hungarian, Italian, Korean, Portuguese, Russian, Spanish, Thai and Turkish. Some difficulties were experienced with translation of the contextual factors indicating that these concepts may be more culturally-dependent. A total of 215 patients with axial SpA across 23 countries (62.3% men, mean (SD) age 42.4 (13.9) years) participated in the field test. Cognitive debriefing showed that items of the ASAS HI and EF Item Set are clear, relevant and comprehensive. All versions were accepted with minor modifications with respect to item wording and response option. The wording of three items had to be adapted to improve clarity. As a result of cognitive debriefing, a new response option 'not applicable' was added to two items of the ASAS HI to improve appropriateness. Discussion: This study showed that the items of the ASAS HI including the EFs were readily adaptable throughout all countries, indicating that the concepts covered were comprehensive, clear and meaningful in different cultures.